This reminds me too I forgot to say, that early on in my journey (although I much prefer a more interesting and fun journey) my doctor diagnosed me (yes AS well!) with low B12 and he felt maybe a contributor to the numbness and tingling issues I was experiencing, but to know for sure I would have to get my B12 up to normal. It was ridiculously low (just about below 80 I think he said) so I was immediately advised to get weekly B12 shots, and then moved to monthly. After going back and still having issues keeping a normal level, the doctor so kindly advised he didn't think I should be semi-vegetarian (YES I said semi-vegetarian, I know I'm opening a can of worms here... this means (to me and many others) I only ate fish and chicken, and no other meat product (because I thought my stomach problems were from red meat because my mother said so... OK? ha!)... so I became a red meat eater because I was going to do anything to try and get this bloody numbing and tingling to disappear!!! I must admit - I've never looked back! After my husband made me the most delicious steak I had ever eaten it became a weekly meal (doctor prescribed you know!)... you are all wondering, has it helped? NO, but I bloody love a good steak and pretty much anything that tastes good cooked on a BBQ (only organic though, I know... that's yet another can of worms for some!)... I no longer go for B12 shots I use Nutriverus (http://mannatechscience.org/home/products/nutriverus) to maintain my levels and as a bonus I get a whole bunch of other nutrients as well.
So back to my Neurologist appt. Where was I? (No, not fibro fog, you try and remember all your details - see how you go - ha!). I did discover after this appt with some delving that there definitely are some links to Fibro and gluten intolerance and so forth but I will get back to that. Are you all keeping up? I know, I go a bit here and there as I remember things. It's kind of like watching or listening to Billy Connelly when he tells a story - except he's funny!!! The Neurologist, if anything, became my new hero in a way. Why you ask? Nothing happened! Don't be so rude! I am happily married to the most wonderful gorgeous man alive! (although this Neurologist was attractive I must say!)... ok, enough of that, you're dying to know why?!! HE SAVED ME FROM BEING A ZOMBIE (an Amitriptyline ZOMBIE!!!)... yes, he did. He prescribed me Gabapentin. Enter a new lease on life, at least one that allowed me to wake up, properly wake up and get up, right away, without taking an hour to gather my senses and pull my heavy drug induced self upright and to feel some normalcy in my life first thing in the morning! Maybe not everyone reacts the same but for several years, yes I slept some good night sleeps mostly, but I couldn't shake the drag for the first part of my day (and I was only on 10mg/3x at night =3pills). I'll tell you how potent these were... but don't tell anyone because as you know you aren't supposed to share prescribed medicine... my husband who is 6'1 and a solid man (solid does not mean fat by the way, not that there is anything wrong with that, but just trying to paint a picture) was having trouble sleeping (stress from work) for about 3 nights, and he said to me I need something to make me have a good night sleep, so I let him have one, just one... and he slept all night, didn't move until 9am!!! (He wakes up at 5.30am EVERY morning) so of course I thought he was dead, drooling and all (you can laugh because it was funny but only because he wasn't really dead!)... and then he was hung over from it all morning. He said to me he had a new outlook on what I had to go through to function on 3 of those bloody pills!!! We laugh now because it is quite funny that at first he thought hooray, when I got Amitriptyline because he says I was no longer b*tchy ha! (in the nicest possible way! he knows why now as obviously I was sleep deprived for so many years, but I honestly wasn't a b*tch, I was just a very, very, very tired woman trying to function normally!)... to a woman who can rise up at a decent hour without my ass dragging on the ground! Here is where I reckon you should feel free to show your partner, whoever doesn't have Fibro this excerpt, so they know firstly why you are a zombie if you are on Amitrip (I'm tired of typing the whole thing so I'm shortening it), and secondly why you might be b*tchy sometimes, and thirdly, why they should make you a coffee or tea every morning!
Ok, so now I've been on Gabapentin, am I cured?